Family raise awareness of haemophagocytic lymphohistiocytosis

Oliver Scholes ENGEMN00120120720111020
Oliver Scholes ENGEMN00120120720111020

A family have been raising awareness of the rare condition which claimed the life of their two-year-old son.

Paul and Andrea Scholes were chosen to appear in a publicity video for Histiocytosis UK following the death of their son Oliver in June 2012.

He had been diagnosed with haemophagocytic lymphohistiocytosis (HLH), a condition which affects the immune system, but died a few days later.

His family have since raised more than £25,000 for the charity and were asked to share their story for the promotional video, which was released last week as part of Histiocytosis Awareness Month.

The couple’s two other children, three-year-old Toby and Rosie, 11 months, also appeared in the film.

Andrea, of Kesteven Road, Stamford, said: “As well as letting people know more about HLH, we also wanted to prove that there can be a light at the end of the tunnel.

“Unfortunately we’ve met lots of other families who have also lost their children to this condition, but it’s amazing to see how they’ve all picked themselves up and carried on.”

The video is available to view at in the Share Your Voice section.

The family also added another £170 to their fundraising total by hosting a nearly-new sale at Essendine village hall last weekend. Dozens of families went along to pick up some bargains from the baby and children’s stalls.